Moments of Wonderful

…rather than a lifetime of nothing special. A diabetes blog.

Moments of Wonderful - …rather than a lifetime of nothing special. A diabetes blog.

Good Things

Bigfoot style (because it’s impossible to mention too much good in the world)

1. At the end of a tough drive down the mountains from Nevada to Southern California was a close friend from college (the one who saved my life) and her adorable baby who was up past her bedtime so I could see her. I was more than happy to hammer the “BLUE!” column through the table over and over and draw a “rouwer” (flower? tower?) as many times as she wanted.

2 and 3. My mom who did her research before my arrival and found a local bakery with a gluten free line. Did I mention the shop is a three-time Cupcake Wars winner? (among all the other awesome mom-related activities)

4. Getting to share a meal with an awesome friend (and his family) in the same place we met for the first time in 2007.

5. Trying out a new diabetes accessory. I am always on the search for a new way to carry all my supplies when I travel. I spotted this one and drooled over it at the Friends for Life conference and had my first chance to try it out this weekend. Actual review to follow once I finish typing it.

good things

Proud

This weekend was a big amazing time for diabetes advocacy and I am proud to call these people my friends.

with Kim.

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First, Kim gave an amazing speech on the main stage at the Medicine X conference. MedX is an “initiative explores how emerging technologies will advance the practice of medicine, improve health, and empower patients to be active participants in their own care” (source). From my attendance last year, I know that the room was filled with health care practitioners, fellow patients, entrepreneurs, and all other involved in the healthcare experience. Kim’s message about the power of “me too” is something that touches everyone and it evident as I watched the tweets fly by.

with victoria.

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Meanwhile, just about a four hour drive northeast of the Stanford stage, Victoria and Jeff were busy riding 72 miles around Lake Tahoe in one of the JDRF Ride to Cure Diabetes. 72 miles! And between the two of them they raised over $11,000 to fund research towards better treatments and a cure for type 1 diabetes.

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I am very proud to count these wonderful diabetes advocates among my friends. Even if I don’t have matching dress pictures with all of them.

On cloud 128

cgm in the cloud updateI’ve been using the CGM in the Cloud system (Nightscout) for about six weeks now. I’ve gotten into a routine and it almost seems like second nature to have access to the data now.

The biggest problem to keep track of is the various devices that need charging.

The Dexcom actually doesn’t need to be charged if you have it plugged in to the phone most of the day because it draws power from there. The Pebble watch needs to be charged about once a week. This actually depends on how much I’ve been in range because the vibrating alarms drain the battery. I can get about sixteen hours on the uploader phone connected to the Dexcom.

I don’t want to lose remote access to my data in the middle of the work day or in the middle of the night, and that is where my routine seems to do the trick. I charge the uploader phone to a full charge a few hours before bedtime. Then in the morning while I am getting ready, I plug the phone back in to top off the battery. That way it lasts me until the pre-bedtime charge that night.

I’d love to have 24/7 access to the data I can get from the system, but think 21/7 information is pretty amazing too.

#wearenotwaiting

Welcome back – August Best of the ‘Betes Blogs

It’s been quite a while since I hosted the Best of the ‘Betes Blogs list here. This month I just forgot to get a host until it was too late. Side note: Email me if you want to host in the next few months!

There were definitely some interesting reads this month and some non-traditional nominations. I really enjoyed checking out everything on the list.

Best Use of Humor: The Grumpy Pumper takes a … unique… approach to celebrating his diaversary.

Best Vlog: Spotted on Chris’ blog, this episode of My Drunk Kitchen (retitled My Diabetes Kitchen) provides basic diabetes education and advocacy in a way I’ve never heard before.

Best Recipe: I had to read this one a few times to try to find the recipe from Katy. I think it got nominated for sharing the joy of a day in the life of spending time with family who don’t understand celiac and being gluten free. It’s really a wonder I ever get invited out to eat – like the time the whole family picked a local Italian place.

Best Advocacy: In this post, Moira takes a look at the relationship of the Ice Bucket Challenge and the diabetes community.

Best Reference to a D-Celebrity: Thank you Auntly H for introducing us to Rebecca Young, an Olympic hopeful speed skater with type 1 diabetes. She needs the help of the diabetes community to continue her dream, so please read Auntly’s post.

Best Story of a D Meet-up: A story of the time when Alexis met someone who had just found out he was pre-diabetic and the changes he was committed to make.

Best non-D Related Post: Marie’s post about being SIXTEEN YEARS cancer free was nominated by several different people. As she shares, “Aging is the most amazing thing that can happen. It is proof you lived, even when death was an option. Aging is a gift to be celebrated.”

Best Post by a Type 1: It’s a post by Renza about brittle diabetes, but it is also a post about never giving up and pursing your questions with your doctors until you are satisfied with the answers.

Best Post by a Type Awesome: A post by a Type Awesome as she contemplates her changing role as a Type Awesome.

Best story of a D-mistake: Allison’s post about her possessed Dexcom receiver had me cracking up. I was trying to figure out what the problem was right up until the very end. The real problem sounds exactly like something that would happen to me too!

Best Diabetes Art: Sneaking in right before the end of the month, Kim offers a great depiction on how an awareness month can really feel. One thing I became more aware of at Medicine X last year (don’t forget to sign up to view Kim’s speech this year), was that we are not the only patient community to feel this way.

Best Comments: Another nomination found by way of someone else’s blog (I think it’s the first time it’s happened and it happened twice this month). Thanks to Kerri I found out about Darth Skeptic’s unusual method of diabetes education currently taking place on Twitter. An awesome approach, but I don’t think I have the mental strength to explore the ignorance on the #diabetes hashtag.

There were no posts nominated this month for: LADA/ Type 1.5/ Not otherwise specified, Type 2, or Motivational.

If you’d like to help spread the word about the Best of the ‘Betes Blogs, you can grab the button below or the one listed on the right hand side of this post.

#bestbetesblogs

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Thank you to all those who nominated posts this month and congratulations to those who were nominated.
Alecia
Briley
Kerri
Sara
Scott E
Stephen S
Tina
Tom

Eye wish

my left eyeballI have an appointment with the eye doctor this afternoon. More than any other appointment, this one always makes me nervous. Last year I had a bit of a scare during the appointment.

I have “squiggly vessels” in my eyes – not related to diabetes – so it always takes the eye doctor a little extra time to check everything out. Squiggly vessels are also more likely to bleed than non-squiggly ones since the twists and turns offer more places to break.

I am trying to focus on the positives like getting an updated prescription and possibly new frames.

And more importantly, getting an awesome updated picture of my excessively dilated squiggly vessel eyeballs.

Unrecognizable

I was in my primary care provider’s office the day before I ended up in the ER with DKA at correct diagnosis. He was busy that day so my appointment was not actually with him. He had (mis)diagnosed me originally a few months earlier, so he probably would have spotted the DKA a little easier than his assistant. When I left my appointment I passed him at the nurses’ station and waved so I was sure he knew I was there. But when we called to update him on my hospitalization the next week, he said he hadn’t seen me.

It’s the hair, right? I’m guessing it was the hair.

two months before dx - 2

two months before dx

freak seek 1 month pre dx

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