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Moments of Wonderful

…rather than a lifetime of nothing special. A blog about diabetes and other moments.

Moments of Wonderful - …rather than a lifetime of nothing special. A blog about diabetes and other moments.

Looks can be deceiving

dexcom problemsSometimes two Dexcoms are not really better than one. These Dexcoms look the same. They feel the same. They smell the same. I didn’t try it, but they probably even taste the same (that would clearly void the warranty).

The only problem – they definitely don’t sound the same.

About a week ago, I was showing the features of the G4 to a newly diagnosed diabetic. One of the features that is most valuable to me is the HypoRepeat alert that continues to beep until it is acknowledged. It is important for me to have something that will wake me up in the middle of the night if needed. I thought I was doing something wrong when “Fixed Low” under the Try It menu was only vibrating and not beeping.

A few days later I realized I really hadn’t heard any beeps in a while. There was no way that I was acknowledging every alarm the first time (when it only vibrates). And my BG control is good, but not that good!

Wednesday night I purposefully ignored a high alert to see what it would do. It vibrated a second time but did not beep.

A quick call to Dexcom and a new receiver was on the way. I got it the next day and sent the old one back today.

Based off the experiences of others, I expected to lose a USB port cover or the wheel part of the button on the front. I haven’t heard (!) of anyone else dealing with a selectively mute CGM.

A not-so-dramatic reenactment

why the long tubingThe weather is in triple digits for the foreseeable future here so it just made sense to stop for some frozen yogurt on the way home from a friend’s pool on Sunday.

Frozen yogurt and ice cream typically require me to use a dual wave/combo bolus to account for the fat content. However, the blonde-ness of my hair requires that I wash it as soon as possible after being in chlorine or it will end up an unfortunate shade of green by the end of the summer.

I didn’t want to wait for the combo bolus to end, so what was I to do? Well, it seems all I had to do was find a different place to clip my pump. I use 42 inch tubing and I have a waterproof pump; I am not really sure why I didn’t think of this earlier.

morning DexMonday was a site change day so I didn’t get to try it again, but Tuesday morning I tried to the shower curtain clip again. I have enough trouble the dawn phenomenon each morning, it makes sense to try to eliminate the disconnect time I was adding to it. I need try a few more days before I know whether it’s working or not, but I’m liking what I see so far.

P.S. The curtain picture is a fully clothed reenactment picture I took last night but what is the deal with the theme of my last two posts?!

P.P.S. I think Briley and Babs have tried not disconnecting as well. Anyone else?

At the endo with no clothes on

Friday was my first appointment with my second endocrinologist in my new town. The appointment got off to a bit of a rough start, but I think I found my doctor.

waiting with diabetes

#waitingwithdiabetes

I strongly prefer to schedule my appointments as early as possible in the morning because I hate to wait. The fewer appointments that occur before I get there, the less chance the doctor has to get behind schedule. For this appointment, I had to take the first available, and it was just after lunch time. They sent me 10 pages of medical history to fill out and specifically requested I arrive 15 minutes ahead of my appointment time, so I was hopeful that everything would stay on schedule.

Unfortunately, the waiting room was full (it was a medical practice with a few different doctors) and I waited a half hour past my appointment time (45 minutes total). Then the nurse took me into the room and did all the basic vitals and after she left I waited another 30 minutes before the doctor came in the room. It wouldn’t have been so bad if I wasn’t holding something in just in case they needed a sample of it (if you know what I mean).

The next few minutes were pretty normal – the doctor was happy with my A1c and made one small basal adjustment. But then something happened to me that has never happened before in ten years of diabetes and six different endocrinologists.

He asked me to put a gown on.

I texted a few friends with diabetes while I was supposed to be changing to ask if it was normal, and so far, of everyone I asked, no one has put a gown on at the endo before.

When the doctor got back in to room, I told him that the gown was a first and he was shocked.

checking out the numbers

Haven’t seen this report in a while. Dexcom with a Mac problemz.

“You’re a new patient aren’t you?”

“Yeah, but I’ve been a new patient a bunch of times before and no one has ever done this.”

“Well I was trained in South Africa and in Boston so maybe that’s the difference.”

“Oh, Joslin?”

“Yes. You know about Joslin?”

“Ummm, I think most people with diabetes know about Joslin.”

At that point he made me stop talking to he could listen to my chest.

The downside of his thoroughness is that he sent me home with an orange jug to be used later in the month and I have to return later today for an ultrasound to check on something else (not an emergency but I just wanted to get it done as soon as possible).

In the past I have found that if my A1c is in a “good” range, the doctor basically skims over everything else probably assuming everything else is fine too. It was actually refreshing to spend time with an endocrinologist who is awkwardly thorough in his care.

mySugr Companion – Product Review

A few diabetes appsA few days ago, Scott Johnson contacted me on behalf of his friend Kyle Rose, asking if I would like to try out a new diabetes logging app – mySugr. As you can see from my diabetes app page on my phone, I am always willing to try an app that promises to make living with diabetes a little bit easier. The bar is set quite high however, for continued use of any of these apps. If there is no value added, it is not worth the time it takes to use it (sidenote: GoMeals is at the top of my list – best app for eating out).

Setting up mySugr was pretty easy. I did get a little confused with the slider bar (pictured below) though. I thought it wanted to know my insulin to carb ratio for some sort of meal calculation. Like a lot of people, I have a different ratio for different meals. Then when I entered my first meal in the logbook, I quickly realized that the slider bar was to set up for exchanges. Apparently some people still use those! (Just leave the bar all the way to the left)

setting up the app

lunchtime pointsI’ve only been using the app for a few days, so I am still trying out all the features. I logged my lunch yesterday and earned a bunch of points (more on the purpose of points later). It’s nice that I could earn points for things that I do anyway. There was an opportunity to earn more points by logging my location. I am not sure why the logbook would need my location, I don’t understand the benefit for me, and the safety and privacy issues are just too high for me to consider including that information. I was able to squeeze in a little time on my WiiFit after work today and earned points for logging that activity as well.

So what’s the point of points? To be totally honest, I am not sure yet. The progress bar on the home screen helps keep track of the points and the goal is 50 points per day. I obviously have not reached that point yet. There are additional challenges I can participate in, and one of them is at least somehow tied to a donation to a diabetes organization.

completing a challenge for JDRF

There are clear benefits to the mySugr app. It is easy to log BGs, food, insulin usage, and exercise all in one place. The inclusion of the monster makes a boring task a little more fun (especially when you can name it after a friend). The points are a great bonus, and rumor is that the connections to diabetes organizations are going to get stronger. If I can raise money for my favorite diabetes organizations by doing something that takes maybe five minutes out of my day, that is something that would definitely motivate me to use the app.

progress and points

As is the case with most diabetes apps, I am left wondering if I am the target market. I have an appointment with a new endocrinologist on Friday. I can almost guarantee you that he will have no interest in looking at any of the information from the app. If I can trap him in the room long enough, he will probably look at my Dexcom reports and my pump and meter information from Diasend. If doctors are not taught how to use a mobile app and/or do not understand the benefits of the app, they are not going to encourage their patients to use it.

my logbook so farI am left with the same issue that I end up with on most diabetes apps. What is the value added? Why should I use this app in addition to the other steps in my diabetes management?

I am planning to keep an eye on the app and the updates and continue to experiment with it as more features are rolled out in the United States. If you’ve got an iPhone (Android soon), I’d suggest downloading it and seeing if it fits with your current diabetes management plan or can improve your management and help you tame that diabetes monster.

Disclosure: I was invited to review the mySugr app before it officially launched on Wednesday, June 5, 2013. I was not compensated for this review, and as always, all thoughts and feelings are my own. The mySugr app is now available for download for free in the App Store. For a more comprehensive review, please read Scott’s post.

P.S. The writing of this post was interrupted by a fire truck, ambulance, and hairball. Apologies for any confusion or gaps in information.

A splinter in California

Recent news stories about life for students with diabetes in California have me thinking about my time living there. Most of my life with diabetes was spent in Florida after I moved there for a job, but I was actually raised in Southern California (after my family moved from New York).

Other than a year of my undergraduate college education and two years of graduate school, most of my education was also done without diabetes. I was in public school for part of first grade when we first moved there, went to the private school my mom taught at until 8th grade, and then went to public high school.

headshot

my awesome junior high style

My elementary school and middle school each had about 400 kids in them but I don’t remember one single child with diabetes. My mom has taught at that same school for about 25 years now and I asked her recently if she can remember any kids with diabetes who have attended there. In all that time, there has only been one diabetic at her school.

In a circumstance that I don’t think is that strange for a private school, there isn’t a nurse employed by the school. Any time we felt sick one of the secretaries would take our temperature and if we had one, or faked sick well enough (cough), they would call a parent to pick us up.

I still didn’t know anyone with diabetes in high school. It is possible that there was one there, but at that point if it didn’t involve my group of friends I probably did not know about it.

It wasn’t until one day during my senior year that I even became aware of the situation of school nurses in California schools. I was sitting at one of those desks where the chair is connected and reached toward the front of the desk to readjust it. My hand caught on a rough spot on the desk and a large splinter was suddenly embedded in my finger.

The splinter was in deep enough that trying to get it out myself in class did not produce any productive results. The teacher sent me up to the office to see the nurse to have her take it out. When I reached the office I told the lady at the front desk that I was there to see the nurse and explained why I needed to see her. She told me that the nurse was not there that day, she only spent one day each week at each high school in the district and it was not our turn. She grabbed her notepad to begin to write the note to excuse me from the rest of the day of classes. Without the nurse there, the receptionist explained, there was no one there to help me with my injury. Any of the employees in the office would get in trouble for helping me. There was nothing she could do.

I could not believe how ridiculous the whole situation was – I just wanted to get the splinter out of my finger and to get back to class! I was finally able to get her to hypothetically tell me where the tweezers were kept in the nurse’s office and turn her head as I walked into the room by myself. A few minutes later I was headed back to class with nothing more than a small band-aid.

If the California school system is unable to deal with students with splinters, how in the world can they be prepared to handle students with diabetes?

I don’t know what the best solution is in this case. Can the state afford to hire a nurse to be in each school full time? What about the nurses who protest that only an educated professional is trained enough to dose insulin in the schools? What do they think we all do at home? The kid with diabetes that attended my former school had his mom show up every day at lunch until he was old enough to operate his pump for himself. What about the families where both parents work and that is not an option? It seems like the children with diabetes are facing the consequences of being caught in the middle as both sides debate the best solution.

More about the case here and here.

One day more – my #dayofdiabetes

Yesterday I took my turn at Chris’ idea of chronicling a #dayofdiabetes. I changed my site in the morning, ordered supplies in the afternoon, and did the basics of checking my BG and bolusing/eating accordingly. Nothing dramatic. Diabetes isn’t always about the crazy highs and lows. Sometimes the most frustrating part about it is that it just never ends. Today will be another #dayofdiabetes. I’ll just tweet about it a little bit less.

(It’s a bit picture heavy so I inserted a jump to make it load a bit faster. Click through to read and see more)

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