Moments of Wonderful

…rather than a lifetime of nothing special. A diabetes blog.

Moments of Wonderful - …rather than a lifetime of nothing special. A diabetes blog.

Monday Memories: Good information… bad information

Today for Monday Memories, I am including the two main parts from a May 2007 post. There is a lot of good information and assistance out there for the diabetes community, but you have to know where to look… and where not to look.

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I recently finished reading Cheating Destiny by James Hirsch. It is part autobiography, part diabetes history, part social exposition, part call to action. I LOVED it. I actually recently participated in a chat with him that I found out about here (I looked for the chat transcript for you guys but couldn’t find it. It seems like the transcripts were posted starting in July 2007). I actually finished the book the day before the chat so it was great timing. He seemed very nice and I highly recommend his book to anyone who wants to know more about diabetes. I guess you could buy it on Amazon.

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I went to a diabetes related event the other night. I had high expectations but I was also highly disappointed.
I don’t think it was the organization. Their website is great and the services they advertise are too. This event was supposed to be about nutrition. They brought a lady in from county health department. I had never seen the initials she had after her name – but apparently she is a Certified Diabetes Education Specialist. The only problem was that she either did not know the answers to their questions or gave them bad information.
Told us to increase our intake of vegetables and fruit (I am not saying cut out fruit – but increase it?!). Could not name any ‘free foods’ for us other than broccoli or lettuce. Hadn’t heard of any benefits of incorporating flax into your diet. I noticed she was following a booklet from the ADA – maybe that was the problem.
Here is what concerns me most about the event. I live in an relatively urban environment. The percentages of non-White people – particularly those with higher risks for diabetes – are quite high in the area. In fact, I was one of a small handful of White people at this event.
If this is the best information that is being offered to a community at a very high risk for diabetes and related complications, we are doing our friends and neighbors a huge disservice. It got me pretty fired up. It has even made me want to be a CDE myself. Wonder if that is even possible…
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I realize I live a privileged life. I might not have everything I want (*cough* CGMS *cough*), but I certainly have everything I need. My insurance costs have gotten more expensive, but I have insurance – and a job.
It still makes me sad that there is a large population in my area with diabetes, or certainly at risk for diabetes that is receiving poor outdated information that is endangering their health.
In the back of my mind, I still think it would be amazing to be a CDE. I would mean going back to school and a lot of years so it’s probably not realistic. Instead, I am pursuing some more non-traditional ways of getting involved.
  • Rachel says:

    I’d have to agree with much of what you said after going to the ADA expo this weekend. There have to be ways to help beyond the ADA and its inability to move forward with what works for so many.

    March 9, 2009 at 8:45 am
  • Debbie says:

    I have to agree with you too Sara. Especially about the ADA and the diet recommendations. I live in a very small farming community. I went to a Diabetes seminar held here that was supposed to be mainly about diet. I wanted to see what they were saying. I was for sure the youngest there and I’m not young. But the diets they were recommending were definitely not diabetic friendly. When I would ask a question about why they recommend for instance so many starches per meal the instructor looked at me like I had 2 heads or something.

    After the session was over the instructor came to talk to me. She asked what I knew of diabetes. She was a T1 teaching this class. She saw my pump, asked what my A1C was etc. She said maybe I should be teaching the class instead of her because I seemed better informed. I thought that pretty funny. But they sure do need to rethink a lot of what they are teaching.

    March 9, 2009 at 10:35 am
  • Scott K. Johnson says:

    Scary. I wonder how much better off people would be in those areas if they actually got some reliable information. It is so frustrating to hear about that stuff (again).

    March 9, 2009 at 11:15 am

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