Seeing the Invisible

As this is Invisible Illness Awareness Week, there has been a meme circulating on the topic of things you may not know about invisible illness.

I got it from Suzanne, Crystal, and Rachel (among others).

30 Things About My Invisible Illness You May Not Know


  1. The illness I live with is: Type 1 Diabetes
  2. I was diagnosed with it in the year: 2002 or 2003 depending on your definition
  3. But I had symptoms since: possibly as early as 1999. It’s hard to say.
  4. The biggest adjustment I’ve had to make is: thinking about every decision I make and every bit of food that goes into my mouth. A lot more planning ahead.
  5. Most people assume: that all types of diabetes are the same.
  6. The hardest part about mornings are: waking up with a high blood sugar knowing it is going to ruin most of the day.
  7. My favorite medical TV show is: am I allowed to say dLife?
  8. A gadget I couldn’t live without is: my glucose meter.
  9. The hardest part about nights are: living alone and facing the worry that something could happen to me in my sleep and not having anyone know.
  10. Each day I take __ pills & vitamins: 0. Just insulin.
  11. Regarding alternative treatments: They have a time and place – treating Type 1 diabetes is not one of them.
  12. If I had to choose between an invisible illness or visible I would choose: none of the above. I only know about living with an invisible illness and I struggle sometimes with feeling like people don’t understand day-to-day life with diabetes because it is invisible. I wouldn’t want to trade it in for anything else though.
  13. Regarding working and career: I tend to (by my choosing), give my heart and my soul to my job. When I do that for too long, I can really feel it in my blood glucose results (higher numbers from stress) and know it is time to take some time for myself to get everything back in order.
  14. People would be surprised to know: that I still haven’t totally accepted the whole ‘being diabetic’ thing.
  15. The hardest thing to accept about my new reality has been: knowing that in all likelihood it will not be cured in my lifetime and that I will likely die of complications of diabetes.
  16. Something I never thought I could do with my illness that I did was: I think this question implies something I thought I couldn’t do, but have in fact done. I don’t think I knew enough about diabetes in the early days to come up with a list like that.
  17. The commercials about my illness: aren’t really about ‘my’ illness. Cause more confusion about diabetes.
  18. Something I really miss doing since I was diagnosed is: enjoying a day at the beach without worry. I still go to the beach – I just worry.
  19. It was really hard to have to give up: my thoughts about what my life would look like.
  20. A new hobby I have taken up since my diagnosis is: blogging.
  21. If I could have one day of feeling normal again I would: eat an entire batch of chocolate chip cookies fresh from the oven – but I do ‘feel’ normal now.
  22. My illness has taught me: to work on giving up control of things that I cannot control. That is still a work in progress though!
  23. One thing people say that gets under my skin is: “Can you eat that?” or “I could never do that”
  24. But I love it when people: ask me questions about my life with diabetes and actually care to listen to the answer.
  25. My favorite motto, scripture, quote that gets me through tough times is: Psalm 73:26 “My flesh and my heart may fail, but God is the strength of my heart and my portion forever.” It is actually written in Hebrew on a ring that I got on a trip to Israel.
  26. When someone is diagnosed I’d like to tell them: that they are not alone. That it will eventually start to feel normal and that is okay.
  27. Something that has surprised me about living with an illness is: that I am in general much healthier now. I used to get sick all the time with sinus infections, colds, and the flu. Since I have been diabetic, I have hardly been ‘real person’ sick.
  28. The nicest thing someone did for me when I wasn’t feeling well was: actually asking me what I needed.
  29. I’m involved with Invisible Illness Week because: if only one additional person learns something about living with a chronic invisible illness, it is worth it.
  30. The fact that you read this list makes me feel: like you have too much time on your hands.


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