As I mentioned in my previous post, Roche invited representatives from the American Diabetes Association and the American Association of Diabetes Educatorsto the summit to continue the dialogue between us and them and how we can most effectively communicate with each other and help each other in the social media arena.
After the introduction, I would say the floor was open. With thirty or so people in the room, there were plenty of opinions to go around. No matter how outgoing or shy you are, I would say you dont get involved in social media if you dont have anything to say.
- Scott Strumello wanted to know where the money is going 25% of money raised at ADA goes to research compared to 85% at JDRF.
- Amy from Diabetes Mine questioned the face of the organization. Considering the lack of usability of the website is it for patients or for doctors?
- Chris Bishop was the first to bring up the concern that is all over the online community what is the ADA doing for the Type 1 adults?
- Kelly Kunik pointed out that not only have the Type 1s grown up but that means that we are also financially independent. We will support organizations ($$) that support us.
- Manny questioned where the ADA was on WDD. (which led to my comment that was retweeted several times – “I hate the type 1/type 2 fight. No other disease fights with itself.”)
- There were several concerns regarding the ADA Expo. Christel was frustrated that the only way she heard about the Expo in her town was through a pre-recorded message. If they have our phone numbers, they have our e-mail addresses (and physical addresses). Reach out in the ways that people will actually listen. Cherise attended an ADA Expo and was disturbed to see an abundance of gastric bypass booths and people trying to sell their cookbooks. As Cherise said, Its not about the quick fix, its about education.
- Kelly Close wondered where the doctors were at the recent ADA session. David was frustrated that he could not get a press pass to report on the event for Diabetes Daily. If you really want to reach out to social media, you have to provide the means for us to take part. Ginger tried to contact someone at Diabetes Forecast and got the run-around. Bennet asked who we should reach out to in order to have a better relationship with the ADA as social media members the answer is Dayle 🙂
- Due to insurance reimbursement, endocrinologists are losing money treating us, so new doctors are not joining the field. Christel wondered if the ADA could offer scholarships for doctors willing to pursue endocrinology (who would commit to at least a few years in the field)
- Leeann pointed out the importance of addressing the psycho-social aspects of diabetes care because without that the diabetes education wont stick. She urged the representatives from the ADA to provide additional support for diabetes mental health services.
And that is when things got crazy. The ADA representatives left the room and were replaced with two representatives from the American Association of Diabetes Educators. Again, Scott Strumello was charged with the task of moderating the discussion. Unfortunately, after warming up on the ADA, the group seemed primed for an attack on the AADE. The primary representative did not even finish explaining her job and the goals and objectives of the organization before the group started speaking their minds.
part of a discussion with the AADE about how we could best help each other but that is not what happened. When someone attacks, I think the two basic reactions are either to attack back or to put up a wall. The representative from the AADE definitely put up a wall it was all over her body language (my table started counting her shoulder shrugs).