Moments of Wonderful

…rather than a lifetime of nothing special. A diabetes blog.

Moments of Wonderful - …rather than a lifetime of nothing special. A diabetes blog.

April Blog Carnival: The cup and saucer

These technologies can make life easier, can let us touch people we might not otherwise. You may have a child with a birth defect and be able to get in touch with other parents and support groups, get medical information, the latest experimental drugs. These things can profoundly influence life.
~ Steve Jobs (source)

As far as traditional support groups, I think I have only attended one. The lack of traditional in-person support groups is near the top of my list of frustrations in living with Type 1 diabetes as an adult – particularly having been diagnosed as an adult.

The support group I went to had the best of intentions, but I just think it was poorly designed for the population. Or maybe the population was the problem.

There is something to be said for a support group of people who are in similar circumstances and stages in life. I am not saying that I don’t have anything in common with a retiree getting used to his new life with his insulin pump, or with a mom trying to deal with their diabetic son’s teenage rebellion, but I do think that our needs may be different enough that you can’t adequately meet all of them in one group. It also didn’t help that the facilitator kept calling the participants by the wrong names.

The group also quickly found out (not from me, that would be my own fault and nothing to complain about) that I often write about diabetes on my blog (#meta). I’ve heard the assumption a few times that if you write about diabetes, you must be an expert in it – that you must have everything under control. For most all of us, I don’t think that can be further from the truth. Last weekend, I was listening to Kerri’s revisit on Chris’ Just Talking podcast and she made a comment that really stuck with me. She shared that “Not all of us are trying to make big headlines. Some of us are just telling stories.”

I probably don’t know any more about diabetes than anyone else who has read a book or two on the topic and has a medical support team that generally knows what they are doing. Don’t mistake me for someone who has it altogether, I’m just someone who likes to talk a lot and enjoys having friends in the computer who understand what I am saying.

I would also add that just like many people (Hallie, Meri, Allison, Abby, and Sysy) have written about recently, sharing A1c values and judging a person’s diabetes success or failure off that singular value can also be a mistake. My A1c does not tell my whole story or determine whether or not I need the encouragement and accountability of the support group. I didn’t want to be “an example”, I was there for support just like everyone else.

So now that I’ve complained enough, what would I actually like to see in a diabetes support group?

There is a time and a place for everything but for a SUPPORT group, I would want a group of people with type 1 diabetes, roughly in the same age group that I am in, talking about the struggles, frustrations, and stresses of life with diabetes that we all share.

Hanging out around a table (that grew in size and experiences as the night went on) at the last Friends for Life conference, was the closest I have had to that experience.

I heard great analogy once about helping other people. Imagine a cup, a saucer, and a pitcher of water. You are the cup and the people in your life are the saucer. The pitcher of water is your time, talents, passions, energy, etc.

If you put the saucer on top of the pitcher and pour the water, the saucer gets water on it but the cup remains empty. You might be helping others (for a while) but you will burn out very quickly because nothing is “filling you up.” Instead, picture the cup resting on the saucer, as it should. As you continue to pour the water, the cup will fill up and eventually overflow onto the saucer. You are being refreshed and the people around you get to enjoy the overflow of your time and support as well. It sounds horrible, but you can only put other people first for so long.

I’m working on filling up my cup so that I will have something to share with others.

Earlier this year I completed the training to be a PODS leader for Diabetes Sisters. Instead of just complaining about support groups in my area, I want to do something about it. Within the next few weeks, I will be entering a slower season at work and I am planning to move forward to do something for the diabetes community (of all types) in my area.

This post is my April entry in the DSMA Blog Carnival. If you’d like to participate too, you can get all of the information at http://diabetessocmed.com/2012/april-dsma-blog-carnival-2/
  • Christina says:

    I love the analogy you shared. wonderfully written – hoping to meet you this year at FFL if you are going (hopefully I am taking the kids) I know I am a parent of cwd and thus don’t exactly meet your preferences in a support group but I would still like to hang out with a great writer and pwd who inspires me. Cheers friend.

    April 25, 2012 at 9:43 am
    • Sara says:

      I mean I guess I will hang out with you! 😉

      I tend to write a lot, so I was trying to keep it brief. What I was trying to say is that I need my Type 1 support as my primary support. Then once I am not feeling completely burned out I can laugh, joke, encourage, support, be sarcastic, and act like a fool with anyone who will have me!

      April 25, 2012 at 11:25 am
  • Kim says:

    I actually love that analogy, and I LOVE that you are embarking on something new and exciting that helps both you and others! Go Sara!!!

    April 25, 2012 at 10:47 am
  • Kate says:

    Ditto regarding what Kim and Christina say! Great post, and especially fitting as this week I met up with exactly the type of support group you describe. I thought back to some particularly challenging ‘formal support group’ experiences I had when I was a cwd, and how I knew as an adult I did not want to replicate those experiences and sought out something different. I, too, am working on booking travel for FFL and look forward to meeting you and hanging out there! 🙂

    April 25, 2012 at 11:16 am
  • Shannon says:

    Love the post! I have never heard of PODS but am very interested! I am on Year 20 since my dx. My mom and I went to a support group one time and that was it. It was like you said, well inteded, but not practical. I was one month before my 18th birthday at the time, and the meeting was mostly older, Type 2s. I would love to meet other people in my area! Looks like there is only one PODS group in Texas right now and it’s not in the same part of town I’m in … Hmmm. :/ Thanks for the suggestion!

    April 26, 2012 at 11:19 am
  • Brad S. says:

    Very well said, as usual. I went to two (alleged) diabetes support groups in my 20+ years with D because I thought maybe the first one was just a bad fluke. The second one was even worse. Like you, I felt I had nothing in common with the others, even my diabetes seemed different. Since then I have sought out, and sometimes been sought out, people who were more relatable. To my surprise and delight, I don’t have to sit in a fluorescent lit therapy group environment to find valuable and friendly support.

    April 29, 2012 at 4:43 pm
    • Brad S. says:

      P.S. Love your banner picture. I was just there today!

      April 29, 2012 at 4:45 pm
  • shannon says:

    hey congrats on doing the pods thing with diabetes sisters, that sounds like a great match for you! 🙂

    May 2, 2012 at 11:16 am

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