Moments of Wonderful

…rather than a lifetime of nothing special. A diabetes blog.

Moments of Wonderful - …rather than a lifetime of nothing special. A diabetes blog.

Diabetes Awareness Month – Photo a Day – WDD

In my brain I had some great plans for Diabetes Awareness Month. I even had some ideas for some local advocacy efforts for today, World Diabetes Day. However, it turns out that there are only 24 hours in a day – even when you are only averaging about 5 hours of sleep each night.

There has recently been quite the response on social media to a post on the Tumblr site, My Diabetes Secret, where someone indicated that basically they have pulled back from being involved in the diabetes online community because they feel “judged, alienated, and deserted” by the rest of the community.

The responses have been as varied and complex as I think the issue deserves.

Sometimes people are rude, and even if they get diabetes or have a loved one with diabetes, they are still rude. They are not going to change. Sometimes a post or a picture or a tweet is met with a response from a rude person, and that’s just the way it is. I choose to ignore it, or delete it, or block it, and move on.

Sometimes it is not the fault of anyone in the community. There are people with diabetes all around the world. We are posting content on so many social media platforms. There is absolutely no way to keep up with all of it. There isn’t time for it, and increasingly the technology doesn’t support it (e.g. Facebook top stories).

Ultimately, my thoughts return to a phrase I heard the first time from Kerri a few years ago.

Permission to Miss Out.
(Read Kerri’s post. Read the post where she first heard the phrase.)

I can’t go to every event. I can’t support every advocacy activity. I can’t respond to every blog prompt or participate in every theme week. I’ve given myself permission to miss out, and it’s okay.

I did the best I could today. I successfully treated an overnight low. I remembered to bolus for lunch. I wore my World Diabetes Day pin and told people about it. I picked up my insulin prescription. I totally forgot to bolus for dinner. I missed all 24 hours of the WDD Twitter chat. I got to pick up one of my friends from the airport and I wouldn’t even know her if we both didn’t have diabetes.

I do the best I can as often as I can, and that’s all I can expect from myself and from anyone else in my community.

dmpad - day 14 - wdd

  • StephenS says:

    Love the flat lines on the Dex graphs. I feel the same way you do about it, though I find myself more involved every week.

    I’ve been too afraid to read that post on Diabetes Secrets. I’m smart enough (and experienced enough) to know that there are all kinds of people in all communities, but I haven’t experienced anything or anyone rude yet from the DOC. But I can’t say I haven’t been worried about it.

    Missed you on the chat yesterday. I don’t think I made any embarassing mistakes, so it might not have been too entertaining anyway:)

    November 15, 2013 at 6:56 am
  • Scully says:

    I love this post.
    It put a lot of things in perspective for me. I wish I didn’t miss out on any of the goings on but it all overwhelms me so much!

    I wish nobody felt alienated or unsupported, that makes me pretty sad.

    November 15, 2013 at 8:35 am
  • Lisa says:

    Wow that is sad. But sometimes I don’t leave comments because I feel judged. I attribute it to all the guilt I can’t quite squash surrounding everything diabetes.

    November 15, 2013 at 4:32 pm

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