Moments of Wonderful

…rather than a lifetime of nothing special. A diabetes blog.

Moments of Wonderful - …rather than a lifetime of nothing special. A diabetes blog.

Welcome back – August Best of the ‘Betes Blogs

It’s been quite a while since I hosted the Best of the ‘Betes Blogs list here. This month I just forgot to get a host until it was too late. Side note: Email me if you want to host in the next few months!

There were definitely some interesting reads this month and some non-traditional nominations. I really enjoyed checking out everything on the list.

Best Use of Humor: The Grumpy Pumper takes a … unique… approach to celebrating his diaversary.

Best Vlog: Spotted on Chris’ blog, this episode of My Drunk Kitchen (retitled My Diabetes Kitchen) provides basic diabetes education and advocacy in a way I’ve never heard before.

Best Recipe: I had to read this one a few times to try to find the recipe from Katy. I think it got nominated for sharing the joy of a day in the life of spending time with family who don’t understand celiac and being gluten free. It’s really a wonder I ever get invited out to eat – like the time the whole family picked a local Italian place.

Best Advocacy: In this post, Moira takes a look at the relationship of the Ice Bucket Challenge and the diabetes community.

Best Reference to a D-Celebrity: Thank you Auntly H for introducing us to Rebecca Young, an Olympic hopeful speed skater with type 1 diabetes. She needs the help of the diabetes community to continue her dream, so please read Auntly’s post.

Best Story of a D Meet-up: A story of the time when Alexis met someone who had just found out he was pre-diabetic and the changes he was committed to make.

Best non-D Related Post: Marie’s post about being SIXTEEN YEARS cancer free was nominated by several different people. As she shares, “Aging is the most amazing thing that can happen. It is proof you lived, even when death was an option. Aging is a gift to be celebrated.”

Best Post by a Type 1: It’s a post by Renza about brittle diabetes, but it is also a post about never giving up and pursing your questions with your doctors until you are satisfied with the answers.

Best Post by a Type Awesome: A post by a Type Awesome as she contemplates her changing role as a Type Awesome.

Best story of a D-mistake: Allison’s post about her possessed Dexcom receiver had me cracking up. I was trying to figure out what the problem was right up until the very end. The real problem sounds exactly like something that would happen to me too!

Best Diabetes Art: Sneaking in right before the end of the month, Kim offers a great depiction on how an awareness month can really feel. One thing I became more aware of at Medicine X last year (don’t forget to sign up to view Kim’s speech this year), was that we are not the only patient community to feel this way.

Best Comments: Another nomination found by way of someone else’s blog (I think it’s the first time it’s happened and it happened twice this month). Thanks to Kerri I found out about Darth Skeptic’s unusual method of diabetes education currently taking place on Twitter. An awesome approach, but I don’t think I have the mental strength to explore the ignorance on the #diabetes hashtag.

There were no posts nominated this month for: LADA/ Type 1.5/ Not otherwise specified, Type 2, or Motivational.

If you’d like to help spread the word about the Best of the ‘Betes Blogs, you can grab the button below or the one listed on the right hand side of this post.

#bestbetesblogs

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Thank you to all those who nominated posts this month and congratulations to those who were nominated.
Alecia
Briley
Kerri
Sara
Scott E
Stephen S
Tina
Tom

Eye wish

my left eyeballI have an appointment with the eye doctor this afternoon. More than any other appointment, this one always makes me nervous. Last year I had a bit of a scare during the appointment.

I have “squiggly vessels” in my eyes – not related to diabetes – so it always takes the eye doctor a little extra time to check everything out. Squiggly vessels are also more likely to bleed than non-squiggly ones since the twists and turns offer more places to break.

I am trying to focus on the positives like getting an updated prescription and possibly new frames.

And more importantly, getting an awesome updated picture of my excessively dilated squiggly vessel eyeballs.

Unrecognizable

I was in my primary care provider’s office the day before I ended up in the ER with DKA at correct diagnosis. He was busy that day so my appointment was not actually with him. He had (mis)diagnosed me originally a few months earlier, so he probably would have spotted the DKA a little easier than his assistant. When I left my appointment I passed him at the nurses’ station and waved so I was sure he knew I was there. But when we called to update him on my hospitalization the next week, he said he hadn’t seen me.

It’s the hair, right? I’m guessing it was the hair.

two months before dx - 2

two months before dx

freak seek 1 month pre dx

Last night and ancient history

This is a screenshot of the website displaying my data from my CGM in the cloud. I tend to be a side-sleeper and as much as I try to avoid sleeping on the side with the sensor, sometimes it happens. Because of the additional pressure on the sensor, it often displays incorrect readings as a result. Last night I woke up to the in-app alarms of Nightscout letting me know that my blood sugar was predicted to be below 80 mg/dL for the next 30 minutes (the blue line).

nightscout alarms

Even half-asleep and with only one eye open I could tell that the sudden drop could not have been accurate. I silenced the alarm, rolled back over, and got another successful hour of sleep.

Side note: I have seen a few search terms on my blog related to where someone can “get” or “purchase” CGM in the cloud. The easiest place to start is the Facebook group or the support forum. People there are very helpful identifying the pieces that need to be purchased and how to set up the system.

In other news…

Team TriSaraTops Diabetes is back from extinction and back to fundraising.

I certainly don’t want to end up on the tricera-bottom of the team fundraising list.

August walk donations(click on the picture to donate)

What do you call a dinosaur who never gives up on collecting walk donations?
A try-try-try-ceratops!

Petition part two

I remember when I first tried to get a Dexcom continuous glucose monitoring system. My insurance company quickly denied it and I was told no one in the state had been successful on appeal. I did not have a history of hypoglycemic unawareness or any emergency interventions for a low blood sugar so I determined my chance on appeal was not worth the effort. A few years later, continuous glucose monitors were added to my insurance plan and I was able to purchase the device. There are still private insurance companies that deny access to continuous glucose monitors but those are becoming increasingly rare.

I know there are plenty of people who have no desire to wear a CGM device. They do not want to wear a second device. They are happy with their management without the hassle that can come with bad sites, bed sensors, repeated calibrations, and interfering alarms. But then there are also people with hypoglycemic unawareness, who live alone, or who are extremely sensitive to insulin.

Just like juvenile type 1 diabetes does not go away when a person turns 18, it also does not go away when they turn 65. If a doctor and an insurance company can conclude that a continuous glucose monitor is medically necessary at 64, then I wonder what is clinically different at age 65.

There is now an opportunity for the diabetes community to have our voice heard on this issue. Yesterday, Senators Susan Collins (R) and Jeanne Shaheen (D), who are co-chairs of the Senate Diabetes Caucus introduced S. 2689, The Medicare CGM Access Act. Access to continuous glucose monitoring systems for Medicare participants is supported by JDRF, AACE, AADE, Dexcom, Johnson and Johnson (home of Lifescan and Animas), and Medtronic, among other organizations.

Please read more about the CGM coverage bill and the study data supporting the bill ***at this link*** and considering adding a voice to this important issue. Diabetes technologies continue to grow, develop, and improve, and people with diabetes continue to live longer, healthier lives. Unless there is a cure, access to appropriate diabetes technologies as part of Medicare is an issue that will eventually affect everyone in the diabetes community.

(Petition part 1)

Edited to add:
It is also important to add a signature to ***the petition located at this site***. The goal right now is 10,000 signatures but expect that number to change as each goal is reached. The signatures from this petition will go to the Centers for Medicare and Medicaid Services.

ICYMI – YCDT FFL 2014

I’ve has several great opportunities to stand in the You Can Do This Project booth at several different diabetes conferences. Since videos are difficult to record in the loud exhibit halls, we ask people to write down the thoughts that they would like to share with other people living with diabetes.

I love that families visit the booth together. I love how a little kid with diabetes shares advice that can help even the most seasoned veteran. I love that a few kids visited the booth to share how proud they were of their sibling with diabetes. I love the range of responses from funny to serious and now seeing some familiar faces return from year to year.

Please check out both of the videos from the Friends for Life conference this year. I know I’ve got a few favorite pictures in each video.

Best of the 'Betes BlogsP.S. A few days left to nominate posts for the Best of the ‘Betes Blogs for July posts. The list will be posted on August 4th by Kelley over at Below Seven.

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Disclosure: The ONLY reason I was able to attend the Friends for Life conference this year was due to a scholarship from the Diabetes Hands Foundation to the Diabetes Advocates. The scholarship covered my airfare, hotel, and conference registration. All opinions continue to be my own.

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